When Your Child Has a Chronic Medical Illness: A Guide for the Parenting Journey, Paperback

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

"This is an outstanding book that addresses the challenges of chronic disease in children from multiple viewpoints with a great deal of practical knowledge. Given that Diabetes is one of the most common chronic diseases of childhood, this work will serve to guide families in navigating the sometimes challenging journey to ensure the best possible outcomes for all."--Robert Gabbay, MD, PhD, Chief Scientific and Medical Officer for the American Diabetes Association

"The journey with a chronic illness can be overwhelming, and often calls for education, support, and self-empowerment. Parents and caregivers of children with chronic diseases often take on the critical role of preparing their children for the journey toward, and often extending into, adulthood. Every parent wants to ensure that their child is well-equipped to manage their own care when that time comes. The Crohn's & Colitis Foundation recognizes this guide's value in helping parents along this challenging road. The journey for every child is different, and having a chronic illness adds another layer of complication. This book is a great resource to help families manage mental health, school accommodations, social activities, medical management, and everyday experiences for all with a chronic illness. Parents will appreciate the depth of information offered by this book, and it can serve as a helpful guide in preparing for the journey they will tread together with their children."--Crohn's and Colitis Foundation

"Dr. Sileo and Carol Potter's book is a heartfelt and transparent look at the emotional journey as a parent and full-time caregiver for a child with chronic illness. Frank offers practical advice and personal insight from the experience of dealing with his own invisible disabilities diagnosed in his early twenties. Carol offers her experience with caregiving for her husband who had terminal cancer. The authors provide wisdom and tangible guidance for managing this emotional roller coaster caring for a child that will help anyone dealing with these situations. Their tips and wise counsel for accepting the "new normal" and having a PLAN (Putting Life into Action Now ) are life-giving, as well as their advice for speaking up ("If you don't ask, you don't get") for keeping your engine running along with your health and welfare. This book is a "must-have" for parents in a caregiving role for a child with chronic illness and pain or any disability."--Jess Stainbrook, Executive Director - Invisible Disabilities(R) Association

"When your child is diagnosed with a chronic illness like type 1 diabetes as happened in our family, your world stops. You must learn life sustaining care for your child from people who have spent years, if not decades, learning and practicing their medical skills that you have days, perhaps weeks, to master. This can be overwhelming as the days lead to months and then to years. When Your Child Has a Chronic Medical Illness, written by Dr. Frank Sileo and Carol Potter, MFT and published by the American Psychological Association, is a comprehensive guide to help parents in their journey as they embark upon a life different from what they had expected. This book is extremely thorough, and you will find advice, guidance, and comfort regardless of your family's situation. Among the nearly 400 pages, one sentence stands out: "The clearer your vision of your child thriving with their chronic illness is, the more likely you will be to take action to help them get there." This is the essence of the role of a parent of a child with a chronic illness, and with the help of Sileo and Potter, you will learn to focus on your family and not on the illness to give your child, and your family, the best life possible." --Jeff Hitchcock, President, Children with Diabetes

"As a physician, I have often been in the position of delivering the diagnosis of a child's chronic illness to their parents and family members. While this can be a regular part of my work, it never leaves my thoughts that this news has changed the course of a family's life. In those moments, I often wish I could provide them with support and resources beyond just medical care. This lovely and poignant text by Dr Frank Sileo and Carol Potter, MFT does just that, and I will be using it as a reference for patient's and their families as I develop my practice for years to come. I am so grateful for the attention and support they have brought to this issue." --Miriam E. Goldblum, MD, Psychiatry resident, Weill Cornell Medicine/New York Presbyterian Hospital

"Authors Sileo and Potter bring parent

About author(s):

Frank J. Sileo, Ph.D., is a New Jersey licensed psychologist, an award-winning author, and national and international speaker. He is the founder and executive director of The Center for Psychological Enhancement, LLC, in Ridgewood, New Jersey, where he works with children, adolescents, adults, and families. Since 2010, he has been consistently recognized as one of New Jersey's top kids' doctors. He is often the "go-to" psychologist in the media for his insights on health issues and parenting. Dr. Sileo lives in Ridgewood, New Jersey. Learn more: www.drfranksileo.com

Carol S. Potter, MFT, is a Licensed Marriage and Family Therapist. In her practice she has worked with individuals, families, and couples, as well as children and adolescents in school settings, and facilitated both bereavement, and anger management groups. She helped develop the strengths-oriented Best Practice Parenting program for the Southern California Counseling Center. An active advocate for women survivors of domestic violence she was honored by Sojourn as the Woman of the Year in 1994. Ms. Potter played Cindy Walsh, one of television's most beloved mothers, on Beverly Hills 90210. She lives in Los Angeles, California. Learn more: www.carolpotter.net.